In the fall of 2015 Sarah was connected to Kerry Hughes through Marquette University. Sarah had sent out flyers to various locations in order to create awareness and raise funds for a disorder called, Nemaline Myopathy. Nemaline Myopathy affects 1 in every 50,000 individuals and impacts their abilities to walk, talk, eat and breathe. There are different severities in the disorder and impacts each person differently.

In August of 2015, Sarah’s son, Trevor was born and was transferred to the NICU immediately due to not being able to breathe on his own; he was intubated and he had very low muscle tone. Trevor graced the Smith family with 7 beautiful days before passing away in the arms of his mother and father.

​

Since then Sarah has made it her mission to carry on Trevor’s legacy through sharing their story in an effort to cause awareness. Sarah is the wife of Alex and the mother of another little boy named, Jaxson who is 2 years old. Sarah is completing her Master’s in Social Work in Milwaukee, Wisconsin and currently works for Aurora Family Services assisting individuals and families with accessing public benefits.