Todd currently works as an attorney in the property and casualty insurance operations department of a local insurance company. Corin works as an actuary with a focus on the pricing and implementation of new life insurance products. Their lives were turned upside down with the birth of their now 3 year old son, Max. At 14 months old, Max was diagnosed with Peroxisomal Biogenesis Disorder (PBD). His diagnosis has led to extensive work with the Global Foundation for Peroxisomal Disorders (GPFD), including Corin currently serving on the board of directors and Todd founded and co-chairs the annual Tee It Up! For The GFPD golf tournament and reception in Bloomington, IL. The Tee It Up! event has raised nearly $250,000 over the past two years to help fund research around PBD.

In addition to their work with the GFPD, Todd and Corin are co-founders of Max’s Miles Foundation, a non-profit that leverages local high school students to build custom cars which help children with developmental delays meet a specific milestone.

PBD, also known as Zellweger Spectrum Disorder (ZSD), affects approximately 1 out of 50,000 children. This degenerative disease affects all parts of Max’s body, with notable impacts to his vision, hearing, liver, muscle and bone strength, and general physical development. Most children with this disorder do not survive past the age of 10 and there is currently no cure or treatment available for the disorder. The GFPD is a non-profit organization devoted to supporting research of PBD, as well as those families affected by this terrible disorder.

We are so honored to tell Max’s story as part of Harmony 4 Hope’s Rare Storytellers program.

To learn more about the GFPD, please visit thegfpd.org; To learn more about Max’s Miles Foundation, please visit maxsmilesfoundation.org