Cameron James Joins Harmony 4 Hope in a Rare Disease Day Celebration
January 31, 2020
Harmony 4 Hope Partners with Children’s Hospital of Wisconsin to Feature Rare Patients in Art Gallery
February 13, 2020Harmony 4 Hope is excited to bring our mission and our tune to the Children’s Hospital of Wisconsin on February 28, 2020, in celebration of World Rare Disease Day. This incredibly special event will feature both rockin’ H4H Musical Ambassadors, Trapper Schoepp & Cameron James. We are also delighted to welcome to the stage Associate Director of Undiagnosed and Rare Diseases/Genomic Sciences & Precision Medicine Center, Donald Basel, M.D., who will be delivering a special address.
Showtimes are 10:00 Children’s Auditorium & 12:30 Teen Lounge
February 29 marks the 13th annual global celebration of World Rare Disease Day – a time for people across the globe to come together and recognize the 350 million people worldwide who are collectively impacted by 7,000 different life-limiting and life-threatening rare diseases, more than half of which affect children and young adults.
In addition to hosting this private event, H4H will be gifting CD players, CD’s and a Beamz Musical System to support the music therapists at CHW and their mission to enrich the lives of children and young adults facing medical challenges.
An instrumental component of the H4H mission is to uplift affected children with music and music therapy because we believe that music has healing power. We couldn’t have said it any better than our amazing musical ambassador, Trapper Schoepp:
“A really important part of music is the escapism it can give people. When you’re struggling with something… if you can transport yourself in a melody it can take you somewhere else.”
During the month of February, we invite you to walk the way with patients and learn more about Rare Diseases and the H4H mission to Rock Rare. Please take time to visit our installment in the Lower Level Gallery.
Harmony 4 Hope Rare Disease Day
Concert at Children’s Wisconsin
This Event is not Open to the Public.
Featured Performers:
Trapper Schoepp
H4H Musical Ambassador
As a Musical Ambassador for Harmony 4 Hope, Trapper Schoepp merges his storytelling, musicianship and decade long battle with chronic back pain. He offers a voice of solace in the ongoing struggles faced by those suffering from rare diseases. Schoepp is honored to raise awareness and funds with Harmony 4 Hope to help combat rare diseases worldwide.
Cameron James
Rare Storyteller & H4H Musical Ambassador
Singer and songwriter Cameron James joins H4H from Nashville, Tennessee! Her songs have been used in international commercials and major network television shows and promos. It is without question that her family’s journey with Atypical Hemolytic Uremic Syndrome has directly impacted Cameron’s music. She loves inspiring others with a message of hope and sharing how she’s gone from fear to faith.
Donald Basel, M.D.
Special Guest, Associate Director of Undiagnosed & Rare Diseases
Dr. Donald Basel the medical director of the Genetics Center at Children’s Wisconsin. He also serves as a section chief and associate professor of pediatric genetics at the Medical College of Wisconsin. Dr. Basel brings years of experience working in genomic sciences and precision medicine to his passion serving undiagnosed and rare patients and families and educating the next generation of clinicians and researchers.
Special Thanks to Our Partners
Harmony 4 Hope (H4H) is a nonprofit charity organization founded by Marquette alumna, Kerry Morgan Hughes (Arts ’93). Harnessing the power of music the mission of H4H is to fuel scientific discoveries in Rare Disease, educate future physicians and healthcare providers and uplift affected children with gifts of music and music therapy. Learn more at harmony4hope.org.
Tweet Song Requests for the H4H Rare Disease Day Playlist 2020 @harmonize4hope using #PlayThisFWD! Theme: Songs of Courage.