Ryan and Melissa are the parents of a special lady named Adair who is diagnosed with a rare genetic disorder called Mental Retardation X-Linked 99, Syndromic, Female-Restricted (a mutation of the USP9X gene). She battles against cognitive disability, congenital heart disease, and a constellation of other physical challenges. They are passionate about advocating for all rare diseases in the hopes that it will create a better future for their own daughter and other special kiddos like her!

They are especially excited about Harmony 4 Hope and what the organization is doing to bring rare patients and families together to raise awareness and advocate in the medical community.