Rare Storytellers: Meet Peter Frampton

March 15, 2022

2:00-4:00PM CT

In partnership with the Genomic Sciences and Precision Medicine Center (GSPMC) at Medical College of Wisconsin (MCW), the Children’s Hospital of Wisconsin, and Johns Hopkins, and sponsored by Horizon Therapeutics, Rare Storytellers warmly welcomes Peter Frampton who will share more about Inclusion Body Myositis and his diagnostic odyssey.

Peter Frampton

Harmony 4 Hope Rare Storyteller

Peter Frampton remains one of the most celebrated artists in rock history. Recently, he celebrated the 46th anniversary of his fifth solo album, Frampton Comes Alive!, which remains one of the top-selling live records of all time, with over 17 million copies sold worldwide.

In a recent interview, with Harmony 4 Hope Founder and President, Kerry Morgan Hughes, Frampton reveals his commitment to educating and raising awareness for IBM.

“Where there is education there is a greater chance for funding and advancing research.” says Frampton.

Join us for this pre-recorded discussion and learn more about Peter’s story, including his experience living with Inclusion Body Myositis.

Peter Dankelson

Harmony 4 Hope Musical Ambassador

Peter Dankelson is proof that anything is possible with passion and a positive attitude. He is 21 years old and undergone 36 surgeries to correct birth defects from Goldenhar Syndrome.

Peter is a musician and motivational speaker for Pete’s Diary where his humor and music encourage others to embrace what makes them different. He has motivated thousands to follow the Pete’s Diary mission of living your life with confidence, courage, and kindness.

Peter is a Rare Storyteller for the charity Harmony 4 Hope and a ChooseKind Speaker for Children’s Craniofacial Association.

Lisa Christopher-Stine, M.D., M.P.H.

Associate Professor of Medicine and Neurology; Director of the Johns Hopkins Myositis Center

Harmony 4 Hope Scientific Guest

Dr. Christopher-Stine is an Associate Professor of Medicine and Neurology at Johns Hopkins. As a clinician scientist, she utilizes the Myositis Database developed by her and her colleagues for which she is the Principal Investigator, currently numbering well over 2000 patients recruited worldwide. Learn more.

Rare Storytellers is a division of Harmony 4 Hope created for the purpose of educating on Rare Diseases through songs, stories and science. Rare Storytellers is a rapidly growing network of patients, musicians and medical professionals currently representing over 30 rare diseases.