Jessica and her husband Steve are parents to two wonderful children, Mason 9 and Makayla 7. From the very beginning Makayla has had struggles with her health. By the time Makayla was 3 years old she had lost a significant amount of weight, stopped growing and was experiencing neurological issues, as well as chronic pain. A year later she was diagnosed with Celiac Disease.

Within a few months Makayla was able to get her Celiac Disease under control, but other symptoms quickly began to surface. It became clear that Makayla experiences severe migraines, chronic sinus disease, asthma and other complications breathing. Despite daily sinus and airway clearance, she is constantly battling serious respiratory and sinus infections.

After a misdiagnosis and several surgeries Makayla is currently continuing her journey to identify and control her rare disease.

Makayla challenges her limitations and pushes her body to stay healthy by keeping active with friends, playing lacrosse and dancing every chance she gets. It is an honor to be a part of the Harmony 4 Hope Rare Storytellers Team; sharing her story helps Makayla and her family to take control of her health and bring awareness to the rare and undiagnosed community.